Study conducted in six European regions contributes to better understanding of how to improve the care for people with incontinence in their daily lives at home and in the community.
Patient involvement, knowledge and provisions based on patient profiles were found to be key in enabling people with incontinence and their carers to live independent and dignified lives.
The results of a major pan-European study which gives insight into the quality of continence care services and provisions was launched on April 19th at the 6th Global Forum on Incontinence: “Sustainable health and social care: The role of Continence Care in enabling Independent and Dignified living”.
The study was conducted by AGE Platform Europe, a European network representing over 40 million older people in Europe, and Svenska Cellulosa Aktiebolaget (SCA) . Entitled Management for Containment – A review of current continence care provisions, the study was conducted amongst people with incontinence and informal carers in six regions in Germany, Poland, England and Spain. It aimed to provide an understanding of the existing knowledge patients and carers had about the containment products that are available, and to what extent they were involved in the decision about which product type to use.
The main findings of the study were
“In today’s context of demographic ageing, it is increasingly important to take action to ensure that the support for managing incontinence fully meets the individual’s needs and preferences”, Anne-Sophie Parent, Secretary General of AGE Platform Europe, said. “There is a lot of room for improving the care of people with incontinence by involving them much more in the decision-making when selecting containment products”.
The study highlighted three key factors that could lead to greater user independence and satisfaction in daily management:
The findings of the study aligned closely with the conclusions drawn from an Expert Roundtable held in 2015. Eight leading European patient and civil society organizations1 joined forces and identified six recommendations to improve the care of people with incontinence in a Joint Position Statement 2 calling to:
John Dunne, President of Eurocarers, the European network representing informal carers stated: “Incontinence is a prime example of a challenge to restore independence and dignity and keep people active in, and contributing to society”.